NORD Rare Disease Videos | Informational Videos About Rare …
The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public. NORD works with medical experts and …
Patient Assistance Programs - National Organization for Rare …
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …
Rare Disease Advisory Councils - National Organization for Rare …
NORD supports the establishment of well-organized, high-functioning Rare Disease Advisory Councils in every state. A Rare Disease Advisory Council (RDAC) acts as an advisory body that …
Living with a Rare Disease | NORD
NORD helps those living with rare diseases find patient assistance programs/financial assistance programs and help them get a diagnosis.
Rare Disease Research Grant Program | NORD
Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these …
Contact Us - National Organization for Rare Disorders
Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email …
Spinocerebellar Ataxia - Symptoms, Causes, Treatment | NORD
Jul 17, 2025 · Learn about Spinocerebellar Ataxia, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find
Resources - National Organization for Rare Disorders
May 12, 2025 · Resources Archive - National Organization for Rare DisordersThe National Organization for Rare Disorders (NORD®) hosted this webinar for advocates interested in …
What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …
Rare Disease News - National Organization for Rare Disorders
Aug 21, 2025 · The NORD Rare Disease Scientific Symposium brought together a dynamic community of rare disease clinicians, researchers, and thought leaders for an unforgettable …
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