NORD helps those living with rare diseases find patient assistance programs/financial assistance programs and help them get a diagnosis.

Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these …

The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public. NORD works with medical experts and …

Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email …

May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …

NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …

5 days ago · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.

May 29, 2020 · Learn about Norrie Disease, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and

NORD’s Leadership Team NORD is uniquely focused on purposefully elevating care, advancing research, and driving policy for the 30 million Americans living with rare diseases and their …