At 10 days old, Louie was diagnosed with a genetic condition, CD40 ligand deficiency. His condition required constant care, and his parents, Rebecca and Paul, faced the overwhelming challenge of juggling hospital stays, caring for their four-year-old daughter, Iona, and their own mental well-being. Rainbow Trust Family Support Worker Shelly began supporting the family in hospital, enabling Rebecca and Paul to have some respite, spend meaningful one-to-one time with Iona, and to take a moment to
At 10 days old, Louie was diagnosed with a genetic condition, CD40 ligan…
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