Story time: When Jackson was diagnosed with Nemaline Myopathy, we were told he would be lucky to life 3 months. We were told it was a miracle he was still alive and doing as well as he was. Months later i got to tell that same doctor how well he was doing and the surgeries he went through with no probelms. That doctor sat on the phone speechless and after a long pause i got to hear her say “I was wrong about Jackson”. Hearing that was such a turning point for our family. We’ve since been told by
Story time: When Jackson was diagnosed with Nemaline Myopathy, …
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‘I went on countless job interviews but didn’t ‘look the part.’ The second they saw me, the whole vibe changed.’: Woman with Nemaline Rod Myopathy embraces disability, ‘I want to be seen for the smart, fun, boss babe I am’
‘I went on countless job interviews but didn’t ‘look the part.’ The second the…
12 Feabh 2020
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What Is Nemaline Myopathy, CJI DY Chandrachud's Both Daughters Have? Know All About This Rare Neuromuscular Condition
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7K views · 17 reactions | Christopher Klein, M.D., a neurologist at Mayo Clinic, provides an overview of the new necrotizing autoimmune myopathy test. https://mayocl.in/2Jvp5iP | Mayo Clinic Laboratories | Facebook
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7K views · 17 reactions | Christopher Klein, M.D., a neurologist at Mayo Cli…
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1.7K views · 31 reactions | The typical symptoms that present in Scleroderma Associated Myopathy are muscle weakness, muscle fatigue, muscle pain, muscle endurance issues, and shortness of breath because of diaphragmatic weakness and cardio involvement. Dr. Julie Paik, Assistant Professor of Medicine at Johns Hopkins Rheumatology, explains the symptoms of Scleroderma Associated Myopathy. | Johns Hopkins Rheumatology | Facebook
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1.7K views · 31 reactions | The typical symptoms that present in Scleroder…
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